Life style

Towards a disability-friendly health system

Published

5 years ago

2020/12/6

Gaps in the health care system burden those with disabilities with an added cross. In the backdrop of the International Day of Persons with Disabilities which fell on December 3, we spoke to many stakeholders to push for collective national interventions to enhance the quality of life of those with disability.

by Randima Attygalle

Nisha Shareef from Kandy was born with a rare spinal cord abnormality which left her wheelchair-bound for life. Introduced to rehabilitation at age 11, Nisha’s quality of life improved. Thanks to the vocational training she received through the Ragama Vocational Training School, she learned the art of watch-mending. Today at 50-years, she runs her own business in the Kandy town, her example empowering fellow wheelchair users.

Health challenges for those in Nisha’s shoes are many. Inability to control the passing of urine, catheter and diaper dependency, frequent urine infections and bed sores are among them. Management of all these issues is costly says Nisha who lobbies for a special concession for adult diapers and other medication required by those with disabilities. “Accessibility to public toilets including those at hospitals is a nightmare for us,” she says. Nisha urges the health authorities to have disability-friendly infrastructure at hospitals and to dedicate a help desk and a hotline at least at Teaching Hospitals to assist those with disabilities.

Many young girls and women with mental disabilities and those who are vision impaired left alone at homes are often sexually exploited, she points out proposing a state-supported day-care system to shelter them while their parents or other care givers are at work. This would help ensure their safety.

Having fallen off a rambutan tree at ten, Lasantha Chandimal from Dampe off Madapatha, became paralyzed. Having lost both his parents by 15, Lasantha’s life took a turn for the worse. The Samaritans at the Ragama Rehabilitation Hospital not only uplifted him from a bedridden patient to a wheelchair user but also trained him to maneuver a special tricycle. Lasantha, 36-years old today, has lost his job with the closure of the plastic factory he worked at. His wife, a wheelchair user herself, also worked there.

A spinal cord injury makes Lasantha often susceptible to kidney dysfunction. “I’m a catheter-user and I developed a urine infection during the lockdown which left me helpless with no access to medical treatment. With my temperature running high due to the infection, I called for an ambulance several times to no avail. Finally I had no choice but to scrape my savings and get treatment at a private hospital.”

The absence of special assistance at OPDs, indifference of the support staff and exploitation of those with disability by some, makes matters worse. Improving disabled-health literacy at ground level, improving sanitation facilities for people with disability in hospitals, sensitizing support staff and creating awareness on available help devices are among Lasantha’s suggestions to ease the burden of this community.

Over a billion of people, about 15% of the world’s population, according to the World Health Organization (WHO) have some form of disability. Half those with disability cannot afford healthcare, compared to a third of those without disability. People with disability are more than twice as likely to find healthcare providers’ skills inadequate and people with disability are four times more likely to report being treated badly; and they are nearly three times more likely to be denied healthcare, WHO affirms. The World Bank literature on ‘Disability Inclusion’ documents that ‘many persons with disabilities have additional underlying health needs that make them particularly vulnerable to severe symptoms of COVID-19, if they contract it. Persons with disabilities may also be at increased risk of contracting COVID-19 because information about the disease, including the symptoms and prevention, are not provided in accessible formats such as print material in Braille, sign language interpretation, captions, audio provision, and graphics.’

Translating sensitization on ‘disability and rehabilitation’ into practical reality is urgent, points out Manique Gunaratne, Manager Specialized Training and Disability Resource Centre of the Employers’ Federation of Ceylon. Manique who lost her vision in her 20s due to Retinitis pigmentosa had no proper local guidance to a rehabilitation system. The overseas doctors whom she consulted empowered her on ICT systems available for vision impaired people. “This has made me what I am today,” says the activist who lobbies for help desks which could offer guidance for people with disabilities and their families to make informed decisions. “Very often when a child with a disability is born, parents have no clue what to do with it. If the medical condition turns out to be disability, they are even more helpless,” notes Manique who also proposes a ‘Priority Card’ on health nee

ds and making disability representation stronger at policy-level within the health sector.

The role of collaboration between doctors, physiotherapists and the beneficiary in determining the best assistive device cannot be understated says H.D. Mala Nandani, Administrative Officer, Rehab Lanka which manufactures s

uch devices. “An assistive device has to be a customized and very often there is little awareness among the poorest of the poor who depend on a donated wheelchair which could very often compound the disability.” The National Secretariat for Persons with Disability provides a stipend for such devices, she adds. The local manufacturing volume of assistive devices should be increased for better availability, notes Mala who lost the use of one leg due to a vaccination mishap as a child. “At ground level, the knowledge of personal hygiene among those with disabilities is very poor; hence there should be a system similar to that of midwives to help the families of the disabled in terms of knowledge and guidance to proper health channels.”

The COVID emergency situation which put the local public health system under unprecedented strain has driven the health authorities to design new interventions including meeting the needs of people with disabilities, notes Dr. Shiromi Maduwage, Consultant Community Physician from the Youth, Elderly and Disability Unit of the Ministry of the Health. “We are now developing a system to reach out to those in need in future emergencies. We have already launched a programme to empower care givers during the pandemic. This is facilitated by the National Secretariat for Persons with Disability.

“

A system to improve the COVID-related health messages through Braille and sign language is also underway she says. While the state provides a monthly disability allowance, certain gaps in the system including the need for disabled-friendly infrastructure have been identified; and these need to be bridged, says Maduwage. “The elderly population is growing and disability will be an added burden. Community based rehabilitation is already being strengthened by the health sector to mitigate the challenges and ground level officials sensitized though the MOH divisions.”

Upgrading the school curriculum to incorporate health issues of those with disabilities including their sexual an

d reproductive health and safety can help sensitize future health policy makers to

catering for their needs, remarks Dr. Harischandra Yakandawala, Medical Director of the Family Planning Association and Consultant to the project on sexual and reproductive health during emergencies. “People with disabilities often have barriers in accessing information and we are collaborating with several agencies in addressing this including making online counseling services accessible by victims of gender based violence.” Women and girls with disabilities are the most vulnerable to sexual violence which could result in unwanted pregnancies and sexually transmitted diseases, he says citing the need for organized shelters to provide care for young girls and women enabling their caregivers to be productively employed during day time.

Encouraging all parents to “dream for their child” despite odds, Samanmali Sumanasena, Professor in Paedeatric Disability and Head of the Department of Disability Studies, Faculty of Medicine, University of Kelaniya, urges all partners in paediatric health services to support families with children with mental and physical disabilities. “Research shows that early intervention can make children more cognitively competent and they can be developed into very productive citizens”. In this process, access to correct information, proper referral systems, child intervention services, updated technology for optimum benefits, access to general health care and family support systems are imperative, she says. Training parents and caregivers to routinely intervene to improve their children’s quality of life is important, she points out. Lack of specialists who

can address the concerns of children with special needs in the country is a major bottleneck in enabling wider reach. The Special Needs Programme which was launched in Colombo District in July to meet this challenge is being expanded to the rest of the island as well, says Prof. Sumanasena.

Rehabilitation which is recognized as a human right by the United Nations’ Convention on the Rights of Persons with Disabilities, improves the functioning status of people with disability to achieve the highest possible functional outcome, notes Dr. Sachithra Adhikari, Acting Consultant in Rehabilitation Medicine from the Rheumatology and Rehabilitation Hospital, Ragama.

“Lack of an established care pathway directed towards rehabilitation following initial treatment of disability, is a major drawback. Rehabilitation services are provided only by a few hospitals which hardly meet the need.” She goes on to note that the need to generate awareness on the importance of rehabilitation and its cost benefit both among the healthcare professionals and the public is urgent. Drawing attention to limitations in available rehabilitation personnel and infrastructure, she said the lack of coordinated service provision, leadership for financial and administrative support required for rehabilitation service are problems that need addressing. Also, social acceptance of those with disabilities rather than mere sympathy is important together with sensitivity to their plight.

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Life style

From Vanishing Sea Snakes to DNA in a Bottle

Published

1 day ago

2026/01/18

Thilina Walpola

Dr. Ru on Dr. Rohan Pethiyagoda's book terming a must read. Also in the picture Wildlife Nature Protection Society President Graham Marshall

Dr. Ruchira Somaweera on Rethinking Conservation

What happens when one of the world’s richest marine biodiversity hotspots collapses almost overnight — and no one knows why?

That was the question facing Australian authorities in the early 2000s when Ashmore Reef, a remote marine reserve in the Timor Sea, suddenly lost what once made it globally unique: its extraordinary diversity and abundance of sea snakes.

“At one point, this place had more species of sea snakes and more individuals than anywhere else on Earth,” recalled Dr. Ruchira Somaweera, one of the world’s leading reptile biologists. “Then, within a few years, everything collapsed.”

Speaking at a packed Wildlife and Nature Protection Society (WNPS) Monthly Lecture, sponsored by Nations Trust Bank and held at the BMICH, Dr. Somaweera described how the mysterious disappearance triggered a major federal investigation.

“At the time, I was a federal government scientist,” he said. “We were sent to find out what went wrong — but it wasn’t obvious at all.”

Ashmore Reef, a protected area managed by Parks Australia, was still teeming with turtles, sharks and pelagic birds. Yet the sea snakes — once recorded at rates of up to 60 individuals per hour — had virtually vanished.

Ruchira making his presentation

The breakthrough came not from the water, but from policy.

For decades, traditional Indonesian fishers from Roti Island had been permitted to harvest sharks at Ashmore under a bilateral agreement. When Australia banned shark fishing around 2000, shark numbers rebounded rapidly.

“And sharks are the main predators of sea snakes,” Dr. Somaweera explained. “What we realised is that what we thought was ‘normal’ may actually have been an imbalance.”

In other words, sea snakes had flourished during an unusual window when their top predators were suppressed. Once sharks returned, the ecosystem corrected itself — with dramatic consequences.

“It was a powerful lesson,” he said. “Sometimes collapse isn’t caused by pollution or climate change, but by ecosystems returning to balance.”

The mystery didn’t end there. Some sea snake species once known only from Ashmore were now feared extinct. But instead of accepting that conclusion, Dr. Somaweera and colleagues took a different approach — one that combined science with local knowledge.

“Scientists often fail by not talking to the people who live with these animals,” he said. “Fishermen have decades of experience. That knowledge matters.”

Using museum records, fisher interviews and species distribution modelling, the team predicted where these snakes might still exist. The models suggested vast new areas — some the size of Sri Lanka — had never been properly surveyed.

When researchers finally reached these sites, often involving helicopters, research vessels and enormous logistical costs, they made a startling discovery.

“We found populations of species we thought were gone,” he said. “They were there all along. We were just looking in the wrong place.”

Even more surprising was where they were found — far deeper than expected.

Traditional sea snake surveys rely on night-time spotlighting, assuming snakes surface to breathe and rest. But footage from deep-sea remotely operated vehicles (ROVs) revealed that many species live in the mesophotic zone, where light fades and surveys rarely reach.

“Some of these snakes are deep divers,” Dr. Somaweera said. “They don’t behave the way we assumed.”

That insight led to one of his most remarkable discoveries — coordinated, communal hunting in the Irabu sea krait off Indonesia.

“At 40 metres deep, on the slope of an extinct volcano, we found them hunting in groups,” he said. “They take turns flushing fish and feeding. That level of cooperation was never known in snakes.”

Beyond discovery, Dr. Somaweera’s work increasingly focuses on how conservation itself must evolve.

One of the most transformative tools, he said, is environmental DNA (eDNA) — the ability to detect species from genetic traces left in water, soil or even air.

“You no longer need to see the animal,” he explained. “A bottle of water can tell you what lives there.”

His team now uses eDNA to detect critically endangered snakes, turtles and sea snakes in some of Australia’s most remote regions. In one project, even children were able to collect samples.

“A 10-year-old can do it,” he said. “That’s how accessible this technology has become.”

The implications for countries like Sri Lanka are profound. From snakebite management to marine conservation, eDNA offers a low-impact, cost-effective way to monitor biodiversity — especially in hard-to-reach areas.

Dr. Somaweera ended his lecture with a message aimed squarely at young scientists.

“We already have a lot of data. What we lack is the next question,” he said. “So what? That’s the question that turns knowledge into action.”

After nearly two decades of research across continents, his message was clear: conservation cannot rely on assumptions, tradition or good intentions alone.

“It has to be evidence-based,” he said. “Because only action — informed by science — actually saves species.”

By Ifham Nizam ✍️

Life style

Driving the vision of Colombo Fashion Week

Published

1 day ago

2026/01/18

Thilina Walpola

Fazeena embodying confidence, culture and couture

Fazeena Rajabdeen

Fazeena Rajabdeen stands at the forefront of Sri Lanka’s fashion evolution as the Executive Director of Colombo Fashion Week.

With a visionary approach that bridges local talent with global opportunities, Fazeena has been instrumental in elevating Colombo Fashion Week into a sought-after platform for designers, buyers and industry innovators. In this interview, she shares insights on the growth of Sri Lanka’s fashion landscape, the challenges and triumphs of steering a major fashion event, and her aspirations for the future of the industry.

(Q) As Executive Director of Colombo Fashion Week, how do you define CFW’s role in shaping Sri Lanka’s fashion identity?

(A) CFW is fundamentally the backbone of Sri Lanka’s fashion industry. Over 23 years, we’ve built more than a platform, we’ve crafted an entire fashion ecosystem that didn’t exist before.

What I’m most proud of is that over 80% of the designers you see in Sri Lanka today have come through our development system. That’s not accidental, it’s the result of building infrastructure, including partnerships, brand development support, retail insights, and international networks. We’ve essentially created the conditions for a Sri Lankan fashion industry to emerge organically, rooted in our heritage but completely contemporary in its expression. This has resulted in the creation of few design education schools, fashion retailers, model academies.

CFW has given Sri Lankan fashion an identity that carries weight, one that speaks to craftsmanship, sustainability, and creative integrity. That’s the legacy we continue to build upon.

(Q) What has been your personal vision in steering Colombo Fashion Week over the years?

(A) My vision has always been about scale and sustainability, taking what was a seasonal event and building it into a year-round business ecosystem. My key focus was on developing the next generation through structured programs like emerging designers and CFW Accelerate, embedding responsibility into fashion through tools like the Responsible Meter, and expanding our reach with new editions and International partnerships.

We’ve moved from showcasing fashion to building the infrastructure that makes sustainable, commercially viable fashion careers possible in Sri Lanka. Another mission was to expand the platform so Sri Lankan designers aren’t just showing collections, they’re building brands that compete regionally, especially within South Asia.

(Q) Fashion Weeks globally are evolving. How has CFW adapted while staying true to its roots?

(A) The role of fashion platforms has evolved, as the development of fashion, the consumption of fashion and choices fashion consumers make has changed. At the core Fashion is an emotional choice hence engagement with fashion consumers remains high priority. CFW as a platform that leads the fashion industry, creates formats that effectively engage consumers with the fashion creators and with that open opportunities in Sri Lanka and internationally through BRICS, South Asia and Beyond. There are interesting new projects planned to push this forward.

(Q) How does CFW contribute to positioning Colombo as a regional fashion and lifestyle capital?

(A) CFW is known as a renowned South Asian Fashion Week and serves as a regional hub with its longstanding influence of 23 years in the region. That longevity alone has made us a reference point for South Asian fashion and we’ve become first-in-mind when people think of fashion here.

But it’s more than just presence. CFW has positioned the city with its synonymous brand name and interaction with influential people within the region as a lifestyle destination, not a peripheral market. That sustained visibility and the calibre of what we produce has put Colombo on the map as a regional capital where fashion, craft, and commerce intersect.

(Q) Sustainability and craftsmanship are growing conversations—How are those reflected in designer collections?

(A) Responsibility in fashion has been our cornerstone from the beginning. We’ve always championed Batik and traditional craft, and we’ve backed that with real resources through our craft funds.

What we’ve done differently is make sustainability measurable. The Responsible Meter we developed is a transparent scoring system that shows the environmental and social impact of each garment. Designers now build collections with accountability baked in from the start, not as an afterthought. This process is included in all emerging designer development processes.

(Q) Colombo Fashion Week has been a launch pad for many designers. What do you look for when curating talent?

(A) Above all—passion and drive. You can teach technique, refine a collection, connect someone to the right resources. But that hunger to build something, to push through the hard parts of turning creativity into a viable business That has to come from them.

We look for designers who understand that fashion is both art and commerce. They need a point of view, yes, but also the discipline to execute it consistently. The ones who succeed through CFW are the ones who see the platform as a starting point, not the finish line—they’re ready to put in the work to build a real brand, not just show a collection and continue with us in building that brand.

(Q) What role does CFW play in connecting Sri Lankan designers to global markets?

(A) CFW set out on a designer exchange programme through the BRICS International Fashion Federation, showcasing Sri Lankan talent at BRICS fashion weeks while welcoming international designers to Colombo. The platform positions Sri Lanka within the global fashion landscape while attracting international buyers and media. We have partnerships with the commonwealth countries and relevant fashion weeks. The interaction with global designers we invite during fashion week is primarily to focus on such interactions with Sri Lankan designers, opening doors for learnings and opportunities.

(Q) What can we expect from upcoming editions of CFW?

(A) Every edition has a unique focus to it and we work towards creating more expansion, more accessibility. We’re doubling down on our development programs, bringing in stronger international partnerships, deeper craft integration, and wider opportunities for designers at every stage.

We’re also looking at new formats and editions that create the Sri Lankan story in international markets.

We focus on being beyond a showcase; as the engine that drives Sri Lankan fashion forward regionally and globally. We’re building for scale and impact. The upcoming editions will reflect that ambition.

(Q) You have Co-founded the Ceylon Literary and Arts Festival, what inspired you to start and what was your original vision?

(A) It was a natural expansion, honestly. After years of building CFW and seeing the power of creative platforms, we realized there is space for the same thing for arts and literature, a space that celebrates Sri Lanka’s intellectual and cultural soft power.

The vision was simple: create a festival that puts Sri Lankan voices in conversation with regional and global thought leaders. Literature and the arts are incredible tools for cultural influence, and we weren’t leveraging that enough. Ceylon Literary and Arts Festival became that platform, a way to showcase our writers, artists, and thinkers while positioning Sri Lanka as a hub for meaningful cultural exchange.

It’s about soft power. Fashion opened doors, arts and literature deepened the conversation. Together, they tell a fuller story of who we are as a country.

(Q) What makes it unique in Sri Lanka’s cultural scene?

(A) It’s the ecosystem with its breadth and accessibility. We’ve built a festival that doesn’t silo creativity, it brings together literature, art, film, performing arts and music under one platform. That cross-pollination doesn’t really exist elsewhere in Sri Lanka at this scale.

What sets us apart is that we’ve made it deliberately accessible, students are free as our focus is the Youth. Projects and processes that empower the youth and foster creative talent from the grassroot.

(Q) What role does the festival play in promoting local writers, poets and literary talent?

(A) We platform both established names and emerging voices who haven’t had the visibility. The festival creates real dialogue and gives local talent stages they wouldn’t normally access.

We take the best of the world.

We’ve made it accessible, students get free entry, and we run a Children’s Festival for ages 5 to 11. It’s about building pathways early and giving Sri Lankan writers, poets, and creatives the exposure that launches careers.

Our winner of the first edition of the Future writers’ program, was recently awarded the acclaimed Gratiaen Award. We were happy we were able to mentor and pave the pathway for Savin and all future writers for the next generation.

(Q) What are the next dates to look out for?

(A) We have the HSBC Ceylon Literary and Arts Festival Edition 03 set to take place February 13th ,14th,15th 2026. This year’s Festival brings together creativity across all genres including the children’s festival, performing arts and Arts festival. We are proud to celebrate Sri Lankan and international Authors including the renowned author of the Bridgerton series Julia Quinn.

Following which the annual Summer edition of Colombo Fashion Week will take place in March 2026

This is for the start of 2026. looking forward to many exciting plans for the rest of the year.

Life style

The HALO Trust appoints Rishini Weeraratne as its Ambassador for Sri Lanka

Published

1 day ago

2026/01/18

Thilina Walpola

Focussed and Fearless

The HALO Trust, the world’s largest humanitarian landmine clearance organization, has appointed Rishini Weeraratne as its Ambassador for Sri Lanka. In her new role, she will support HALO’s global mission by raising awareness of mine action, strengthening advocacy efforts, and championing initiatives to protect communities impacted by landmines and unexploded ordnance, particularly in Sri Lanka. She will also play a key role in HALO’s international engagement and communications initiatives.

HALO began working in Afghanistan in 1988. Today HALO operates in more than 30 countries and territories across Africa, Asia, Europe and Caucasus, Latin America, and the Middle East. Its teams work daily to clear landmines, deliver risk education and restore land for agriculture, homes and infrastructure. HALO gained international recognition after Diana, Princess of Wales, visited its work in Angola in 1997 which helped accelerate support for the Mine Ban Treaty. Sri Lanka is one of HALO’s longest standing programmes. HALO has been operational in the island since 2002 and has cleared more than 300,000 mines and over one million explosive remnants of war, enabling thousands of families to return home safely. HALO is the second largest employer in the Northern Province, and its workforce is 99 percent locally recruited. Women make up 42 percent of the demining teams, reflecting HALO’s commitment to local empowerment and employment in post conflict communities.

Rishini Weeraratne, Ambassador for Sri Lanka, The HALO Trust:

“It is a privilege to support The HALO Trust’s mission. Although Sri Lanka is my home country and close to my heart, I am also committed to advocating for HALO’s work around the world. Millions of people live with the daily risk of landmines and unexploded ordnance. By raising awareness and amplifying the voices of affected communities, I hope to contribute to a safer future for families everywhere.”