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Towards a disability-friendly health system

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Gaps in the health care system burden those with disabilities with an added cross. In the backdrop of the International Day of Persons with Disabilities which fell on December 3, we spoke to many stakeholders to push for collective national interventions to enhance the quality of life of those with disability.

by Randima Attygalle

Nisha Shareef from Kandy was born with a rare spinal cord abnormality which left her wheelchair-bound for life. Introduced to rehabilitation at age 11, Nisha’s quality of life improved. Thanks to the vocational training she received through the Ragama Vocational Training School, she learned the art of watch-mending. Today at 50-years, she runs her own business in the Kandy town, her example empowering fellow wheelchair users.

Health challenges for those in Nisha’s shoes are many. Inability to control the passing of urine, catheter and diaper dependency, frequent urine infections and bed sores are among them. Management of all these issues is costly says Nisha who lobbies for a special concession for adult diapers and other medication required by those with disabilities. “Accessibility to public toilets including those at hospitals is a nightmare for us,” she says. Nisha urges the health authorities to have disability-friendly infrastructure at hospitals and to dedicate a help desk and a hotline at least at Teaching Hospitals to assist those with disabilities.

Many young girls and women with mental disabilities and those who are vision impaired left alone at homes are often sexually exploited, she points out proposing a state-supported day-care system to shelter them while their parents or other care givers are at work. This would help ensure their safety.

Having fallen off a rambutan tree at ten, Lasantha Chandimal from Dampe off Madapatha, became paralyzed. Having lost both his parents by 15, Lasantha’s life took a turn for the worse. The Samaritans at the Ragama Rehabilitation Hospital not only uplifted him from a bedridden patient to a wheelchair user but also trained him to maneuver a special tricycle. Lasantha, 36-years old today, has lost his job with the closure of the plastic factory he worked at. His wife, a wheelchair user herself, also worked there.

A spinal cord injury makes Lasantha often susceptible to kidney dysfunction. “I’m a catheter-user and I developed a urine infection during the lockdown which left me helpless with no access to medical treatment. With my temperature running high due to the infection, I called for an ambulance several times to no avail. Finally I had no choice but to scrape my savings and get treatment at a private hospital.”

The absence of special assistance at OPDs, indifference of the support staff and exploitation of those with disability by some, makes matters worse. Improving disabled-health literacy at ground level, improving sanitation facilities for people with disability in hospitals, sensitizing support staff and creating awareness on available help devices are among Lasantha’s suggestions to ease the burden of this community.

Over a billion of people, about 15% of the world’s population, according to the World Health Organization (WHO) have some form of disability. Half those with disability cannot afford healthcare, compared to a third of those without disability. People with disability are more than twice as likely to find healthcare providers’ skills inadequate and people with disability are four times more likely to report being treated badly; and they are nearly three times more likely to be denied healthcare, WHO affirms. The World Bank literature on ‘Disability Inclusion’ documents that ‘many persons with disabilities have additional underlying health needs that make them particularly vulnerable to severe symptoms of COVID-19, if they contract it. Persons with disabilities may also be at increased risk of contracting COVID-19 because information about the disease, including the symptoms and prevention, are not provided in accessible formats such as print material in Braille, sign language interpretation, captions, audio provision, and graphics.’

Translating sensitization on ‘disability and rehabilitation’ into practical reality is urgent, points out Manique Gunaratne, Manager Specialized Training and Disability Resource Centre of the Employers’ Federation of Ceylon. Manique who lost her vision in her 20s due to Retinitis pigmentosa had no proper local guidance to a rehabilitation system. The overseas doctors whom she consulted empowered her on ICT systems available for vision impaired people. “This has made me what I am today,” says the activist who lobbies for help desks which could offer guidance for people with disabilities and their families to make informed decisions. “Very often when a child with a disability is born, parents have no clue what to do with it. If the medical condition turns out to be disability, they are even more helpless,” notes Manique who also proposes a ‘Priority Card’ on health nee

ds and making disability representation stronger at policy-level within the health sector.

The role of collaboration between doctors, physiotherapists and the beneficiary in determining the best assistive device cannot be understated says H.D. Mala Nandani, Administrative Officer, Rehab Lanka which manufactures s

uch devices. “An assistive device has to be a customized and very often there is little awareness among the poorest of the poor who depend on a donated wheelchair which could very often compound the disability.” The National Secretariat for Persons with Disability provides a stipend for such devices, she adds. The local manufacturing volume of assistive devices should be increased for better availability, notes Mala who lost the use of one leg due to a vaccination mishap as a child. “At ground level, the knowledge of personal hygiene among those with disabilities is very poor; hence there should be a system similar to that of midwives to help the families of the disabled in terms of knowledge and guidance to proper health channels.”

The COVID emergency situation which put the local public health system under unprecedented strain has driven the health authorities to design new interventions including meeting the needs of people with disabilities, notes Dr. Shiromi Maduwage, Consultant Community Physician from the Youth, Elderly and Disability Unit of the Ministry of the Health. “We are now developing a system to reach out to those in need in future emergencies. We have already launched a programme to empower care givers during the pandemic. This is facilitated by the National Secretariat for Persons with Disability.

A system to improve the COVID-related health messages through Braille and sign language is also underway she says. While the state provides a monthly disability allowance, certain gaps in the system including the need for disabled-friendly infrastructure have been identified; and these need to be bridged, says Maduwage. “The elderly population is growing and disability will be an added burden. Community based rehabilitation is already being strengthened by the health sector to mitigate the challenges and ground level officials sensitized though the MOH divisions.”

Upgrading the school curriculum to incorporate health issues of those with disabilities including their sexual an

d reproductive health and safety can help sensitize future health policy makers to 

catering for their needs, remarks Dr. Harischandra Yakandawala, Medical Director of the Family Planning Association and Consultant to the project on sexual and reproductive health during emergencies. “People with disabilities often have barriers in accessing information and we are collaborating with several agencies in addressing this including making online counseling services accessible by victims of gender based violence.” Women and girls with disabilities are the most vulnerable to sexual violence which could result in unwanted pregnancies and sexually transmitted diseases, he says citing the need for organized shelters to provide care for young girls and women enabling their caregivers to be productively employed during day time.

Encouraging all parents to “dream for their child” despite odds, Samanmali Sumanasena, Professor in Paedeatric Disability and Head of the Department of Disability Studies, Faculty of Medicine, University of Kelaniya, urges all partners in paediatric health services to support families with children with mental and physical disabilities. “Research shows that early intervention can make children more cognitively competent and they can be developed into very productive citizens”. In this process, access to correct information, proper referral systems, child intervention services, updated technology for optimum benefits, access to general health care and family support systems are imperative, she says. Training parents and caregivers to routinely intervene to improve their children’s quality of life is important, she points out. Lack of specialists who

 can address the concerns of children with special needs in the country is a major bottleneck in enabling wider reach. The Special Needs Programme which was launched in Colombo District in July to meet this challenge is being expanded to the rest of the island as well, says Prof. Sumanasena.

Rehabilitation which is recognized as a human right by the United Nations’ Convention on the Rights of Persons with Disabilities, improves the functioning status of people with disability to achieve the highest possible functional outcome, notes Dr. Sachithra Adhikari, Acting Consultant in Rehabilitation Medicine from the Rheumatology and Rehabilitation Hospital, Ragama.

“Lack of an established care pathway directed towards rehabilitation following initial treatment of disability, is a major drawback. Rehabilitation services are provided only by a few hospitals which hardly meet the need.” She goes on to note that the need to generate awareness on the importance of rehabilitation and its cost benefit both among the healthcare professionals and the public is urgent. Drawing attention to limitations in available rehabilitation personnel and infrastructure, she said the lack of coordinated service provision, leadership for financial and administrative support required for rehabilitation service are problems that need addressing. Also, social acceptance of those with disabilities rather than mere sympathy is important together with sensitivity to their plight.



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Elegant threads of tradition: Darshi Batik at Sheraton

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Surrounded by styles and smiles

As the Colombo skyline softens into golden hour “Sundown with Buddhi Batiks “at Sheraton Colombo unfolded as a seamless blend of heritage and contemporary elegance – an experience that felt both intimate and visually striking.

The evening drew a crowd that reflected the very essence of the brand it celebrated refined, creative and deeply connected with flowing silhouettes, to cultural and the quiet hum of conversation over curated cocktails.

Buddhi Batiks with Darshi Keerthisena is a label celebrated for transforming Sri Lankan batik into modern, wearable art. Her story telling through fabric where each piece reflected craftsmanship, culture, and a contemporary design language. The collection leaned into effortless elegance, resort ready kaftans, structured yet fluid dresses and statement pieces that moved as beautifully as they look. The atmosphere was electrifying. Guest sipped on delicated curated cocktails as soft music hummed in the background, creating an ambience that felt both exclusive and deeply relaxed.

More than aesthetics, Buddhi Batiks tells stores. Each motif, each gradation of colour carried a sense of place and memory.

Buddhi Batiks is proof that fashion can honour heritage without compromising on glamour, with every brush stroke of wax and every hand dyed.

The event, aptly named Sundown, was an ode to the timeless elegance of Sri Lankan craftsmanship, seamless fabrics woven into contemporary silhouettes that speak to a global sensibility.

The collection by Buddhi Batiks drew inspiration from Sri Lanka’s natural landscape, from the shimmering coastlines to the lush inland jungle, translated into vivid patterns and textures on display.

The brand celebrated Sri Lankan’s rich artistic legacy while embracing a global fashion vision.

There are designers who wear fashion and then there are designers who live fashion, Darshi Keerthisena, creative director and CEO of Buddhi Batiks, belongs to the latter. She hasn’t merely followed a family tradition. She has reimagined it, transforming Sri Lankan batiks from a cultural craft into a globally resonant fashion statement. Under Dharshi’s leadership, Buddhi Batiks has evolved far beyond traditional cotton saris. She has introduced silk, geogette and satin as canvasses for Batik, infusing pieces with contemporary silhouettes and subtle, sophisticated colour stories that appeal to international design sensibilities. Her innovations have taken batik onto global platforms.

Darshi’s innovation isn’t only stylistic, it is ethical. She has championed sustainable practises, such as digital printing on recycled textiles and eco friendly dyes, while keeping handmade batik at the heart of the brand.

Her career has been marked by accolades and awards Dharshi’s vision for batik is expansive. She sees it not just on runaway gowns or resort wear, but translated into interiors, accessories and everyday life, capable of transcending borders while keeping the soul of Sri Lankan artisan’s heritage alive.

Sheraton Colombo Sri Lanka’s most prestigious 5-star hotels with Paul Sun, General Manager and his dedicated team, [played a key role and the hotel’s assistance went beyond providing a venue, it was a seamless blend of hospitality, event management and creative support.

By Zanita Careem

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Farzana redefining power and purpose for women

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Farzana on celebrating women’s strength

Farzana Baduel stands as a powerful voice in global communication and a passionate advocate for women’s empowerment making her perspective especially relevant on International Women’s Day. As CEO of Curzon PR,in UK she has built a career defined by influence, resilience and purpose championing the advancement of women’s leadership.

(Q) How would you describe the role of women in the UK today and how does it compare to women’s role in Sri Lanka?

(A) Women in the UK today hold positions of real influence across politics, business, media, academia and the creative industries. There are strong legal protections around equality and conversations about gender parity have become mainstream. But equality in law does not always translate to equality in lived experience, particularly when it comes to pay gaps, the weight of childcare, and who actually occupies the most senior positions.

Sri Lanka presents a genuinely fascinating paradox. It elected the world’s first female Prime Minister in 1960, yet many women still face structural and cultural constraints, especially outside urban centres. What strikes me about Sri Lankan women is their extraordinary resilience and entrepreneurial spirit, often demonstrated within more traditional frameworks. That combination of ambition and adaptability is something I find deeply impressive.

Both countries are progressing. But both still have considerable work to do.

(Q) Are there areas where UK women face challenges that Sri Lankan women may not, or vice versa?

(A) In the UK, one of the most persistent challenges is what I would describe as the double burden: professional ambition sitting alongside disproportionate domestic responsibility. There is also the very modern pressure of digital culture, the weight of image, comparison, online abuse and public scrutiny that affects women in ways men rarely experience to the same degree.

In Sri Lanka, the challenges tend to be more structural. Economic instability, limited access to opportunity in rural areas, and in some cases stronger social conservatism around gender roles all shape what is possible for women. And yet extended family networks in Sri Lanka can offer something many women in the UK genuinely lack: built in childcare, intergenerational support, a community that holds you.

The pressures differ. But the underlying theme is remarkably consistent. Women everywhere are negotiating expectations that men are simply not asked to meet.

(Q) How do you define what it means to be a woman today, and have there been moments where your gender shaped your opportunities or challenges?

(A) To me, being a woman today means navigating complexity with strength. It means holding ambition and empathy in the same space without apologising for either. It means being commercially sharp and emotionally intelligent. Above all, it means resilience.

There have certainly been moments in my career where being a woman changed the dynamic in a room, particularly in senior advisory spaces involving government or corporate leadership. Early on, I sometimes had to prove competence before being taken seriously. Over time I came to understand that credibility does not come from changing who you are. It comes from deep expertise and calm authority.

Gender shapes experience. But it does not have to define potential.

(Q) How can women lift each other up in workplaces, communities and society at large?

(A) By being genuinely generous with opportunity. Sponsorship matters far more than mentorship. It is powerful when senior women actively advocate for other women in rooms those women are not in. That kind of invisible advocacy changes careers.

By rejecting scarcity thinking. There is not only one seat at the table.

And by modelling integrity. When women support each other publicly and privately, it does not just help individuals. It changes workplace cultures entirely.

(Q) Do you believe women are getting enough representation in leadership roles? If not, what needs to change?

(A) Progress has been made. But representation at the very top, in boardrooms and in global political leadership, remains deeply uneven. And the solution is not simply about recruiting more women. It is about changing the systems they are recruited into: flexible leadership structures, normalised parental leave for both men and women, transparent promotion criteria, and zero tolerance for the kind of subtle bias that is so easy to dismiss but so corrosive over time.

Representation is not about optics. It is about influence. Those are not the same thing.

(Q) What societal expectations or stereotypes have you personally encountered as a woman?

(A) The most persistent one is the idea that women must choose between warmth and authority, that being decisive risks being labelled difficult. Men are rarely subjected to that framing. A decisive man is simply a leader.

There is also the expectation that women should balance everything effortlessly, as though the juggle should be invisible. The reality is that balance is dynamic, often imperfect, and occasionally held together by nothing more than determination and strong coffee.

(Q) What challenges do women face in accessing healthcare or support, and how can society improve this?

(A) Even in developed countries, women’s health is frequently under researched and under prioritised, particularly around reproductive health, menopause and mental health. This is not a niche issue. It affects half the population.

Improvement requires sustained investment in research, workplace policies that recognise women’s health realities, and a collective willingness to remove the stigma that still clings to these conversations. Health is not a private inconvenience. It is a public priority.

(Q) Do you feel women are encouraged enough to pursue their passions alongside family and work responsibilities?

(A) The encouragement exists in rhetoric. The practical support frequently does not. True encouragement requires structural foundation: affordable childcare, flexible working arrangements, and a cultural acceptance that ambition in women is not selfish. It is not something that requires justification.

Women should never feel they must apologise for aspiration.

(Q) How do media portrayals of women impact society’s perception of them?

(A) Media shapes norms in ways we often do not notice until we look back. When women are portrayed primarily through the lens of appearance, domestic roles or conflict narratives, it quietly narrows the public imagination about what leadership looks like.

When media platforms showcase women as thinkers, strategists, innovators and policymakers, something opens up, especially for young girls who are watching and deciding, consciously or not, what is possible for them. Representation shapes expectation. That is not a small thing.

(Q) What changes would you most like to see for women in the next decade?

(A) Economic parity, not just participation. Greater support for women entrepreneurs. More women shaping foreign policy and global governance. A healthier and kinder public discourse online.

But most importantly, I would like to see confidence. Young women growing up without internalised limits, without the quiet voice that tells them to take up less space. That, more than any policy change, is what transforms the next generation.

(Q) And finally, how do you define what it means to be a woman today?

(A) To be a woman today is to stand fully in your capability without shrinking for anyone’s comfort. It is to embrace both strength and compassion, not as opposites but as complements. It is to define yourself rather than accept the definitions others impose upon you.

And perhaps most importantly, it is to leave the path a little wider for the women who come after you.

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From Hanoi to Colombo: Women leading change across borders

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Ambassador of Vietnam in Colombo Trinh Thi Tam talks about women connecting across borders

Grace, resilience and quiet determination define the women of both Vietnam and Sri Lanka, two nations bound not only by rich cultural heritage, but by the enduring strength of their women. As the world marked International Women’s Day, the interview with the Vietnamese Ambassador in Sri Lanka offers a compelling lens into how tradition and modernity intervine to shape the lives of women across these societies Women in Vietnam and Sri Lanka continue to redifine their roles, balancing family, career and ambition with remarkable pause. While their journeys were shaped by distinct histories and cultural naunces there is a shared narrative of perseverance, adaptability and progress. In this interview the envoy reflects on these parallels and contrasts, offering insight into the evolving status of women. The challenges, they face and the inspiring strides being made towards equality.

Q How would you describe the role of women in Vietnam compared to Sri Lankan women?

A Women in Vietnam and Sri Lanka share many important similarities. In both societies, women are known for their diligence, resilience, and strong sense of responsibility toward family and community. Having experienced periods of war, conflict, and economic hardship, women in both countries deeply understand the values of sacrifice, solidarity, and perseverance. They often carry multiple roles at the same time—caregivers, income earners, and community supporters. In both countries, there has been an increasingly active participation of women in the workforce, including trade, manufacturing, SMEs, as well as in the leadership. It is meaningful to recognize these shared qualities that quietly but steadily contribute to social stability and national development.

Q From your personal experience, what defines a modern woman in your country?

A From my personal experience, a modern woman is someone who strives for balance rather than choosing between roles. She values education, independence, and self-development, while remaining deeply committed to her family and social responsibilities. She is confident, adaptable, and increasingly comfortable using technology and global networks. At the same time, she respects cultural values and traditions, selecting what is meaningful rather than rejecting them entirely. Modern women today are not defined only by career success, but by their ability to manage multiple responsibilities with empathy, resilience, and purpose.

Q Have you seen a significant change in women’s roles over the past decade?

A Yes, there have been noticeable and positive changes over the past decade. More women are pursuing higher education, entering diverse professional fields, and participating actively in economic and social life. Attitudes toward women’s leadership and decision-making roles have gradually improved, especially among younger generations. At the same time, women continue to shoulder major responsibilities within the family. This dual role has become more visible and more openly discussed. While challenges remain, the growing recognition of women’s contributions—both at work and at home—reflects a meaningful shift toward a more inclusive understanding of development.

Q Women in Vietnam are often visible in trade and entrepreneurship. How does this compare with Sri Lanka?

A Women in both Vietnam and Sri Lanka demonstrate a strong entrepreneurial spirit, particularly in trade, services, and family-based businesses. Many women engage in economic activities not only for personal ambition, but also to support their families and contribute to their communities. In both countries, women entrepreneurs are known for their adaptability, hard work, and practical approach to business. While the scale and sectors may differ, the underlying motivation and resilience are remarkably similar. With better access to finance, markets, and mentoring, women in both societies have great potential to further expand their entrepreneurial impact.

Q Do you think society equally values women’s economic contributions in both countries?

A Societal recognition of women’s economic contributions has improved, but full equality has not yet been achieved in either country. Women’s income is increasingly important for household stability, yet their unpaid care work often remains invisible. Professional success is respected, but women are still expected to prioritize family responsibilities. This creates pressure to constantly balance multiple roles. It is important to acknowledge that true equality means valuing both paid and unpaid work, and creating supportive environments that allow women to contribute economically without compromising their well-being or family life.

Q Vietnam has relatively strong female participation in governance. What drives this? Why is female representation still low in Sri Lanka?

A Both Vietnam and Sri Lanka recognize the importance of women’s participation in governance, and both have many capable women leaders. Differences in representation are largely shaped by institutional structures and political culture rather than women’s ability or commitment. Where supportive frameworks, mentoring, and clear pathways exist, women are more likely to enter public leadership.

In Sri Lanka, many talented women also serve their communities in different ways, though public roles can be more demanding to combine with family responsibilities. Creating more supportive and flexible pathways can help more women step forward and share their perspectives, enriching decision-making and social cohesion.

Q What are the most pressing issues women still face today?

A One of the most pressing challenges women face today is achieving a healthy balance between work, family responsibilities, and personal life. Women continue to carry a disproportionate share of caregiving and household duties, even when they are fully engaged in professional work. Gender inequality in wages, leadership opportunities, and decision-making persists. Social expectations often require women to excel in all areas simultaneously, creating emotional and physical strain. Addressing these issues requires not only policy support—such as childcare and flexible work—but also cultural change that encourages shared responsibility and mutual respect.

Q Do globalization and social media help accelerate gender equality?

A Globalization and social media can play a positive role in accelerating gender equality by expanding access to information, markets, and role models. They allow women to connect, learn, and express their voices beyond traditional boundaries. Many women entrepreneurs and professionals have benefited from digital platforms. However, these tools also bring challenges, including online harassment and unrealistic social pressures. Their impact depends on how responsibly they are used and supported. When combined with education, digital literacy, and safeguards, globalization and social media can become powerful tools for women’s empowerment.

Q How do you see the future of women evolving in the next 10 years?

A Over the next decade, I expect women to play an even more visible role in leadership, entrepreneurship, and innovation. Flexible work models and digital technologies will help more women participate in the economy while managing family responsibilities. Younger generations are already embracing more balanced views on gender roles and shared caregiving. While challenges will remain, especially in achieving true equality, the overall direction is positive. With sustained support from institutions, families, and society, women’s contributions will continue to shape more inclusive and resilient communities.

Q What can Sri Lanka learn from Vietnam in terms of empowering women economically?

A Sri Lanka can draw useful lessons from Vietnam’s emphasis on integrating women into value chains, supporting small businesses, and linking skills training with market access. Practical support—such as simplified procedures, access to finance, and business networks—helps women move from informal activities to sustainable enterprises. Equally important is recognizing women’s economic roles publicly and socially. Empowerment is most effective when economic opportunity is combined with family support and social respect. These shared principles are especially meaningful and highlight when celebrated International Women’s Day on 8 March.

By Zanita Careem

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